CATTEDRA - The Slovenian IT company Better d.o.o illustrates the work phases that led to the construction of the Cattedra Interreg project database.

The general objective of the project is to bring together, share and improve the therapeutic methodologies and diagnostic possibilities of rare diseases in children in the area of paediatric rheumatology. The project will strengthen collaboration between the two hospitals to increase knowledge surrounding juvenile autoimmune diseases in neighbouring regions. 
 
Better has set up four different clinical registers in one application. When clinical data is entered, the complete clinical data database is obtained. 
 
In the first phase, two registers for juvenile idiopathic arthritis (JIA) and juvenile dermatomyositis (JDM) created. This involved the digitization of 23 forms. The registers have been active since August 2021. 
 
The second and third phases were completed in March 2022. 
 
The second phase included the creation of digital registers for two other diseases: systemic lupus erythematosus (SLE) and autoinflammatory disease (AID). The two registers involved the digitization of 9 different forms. Better has also developed add-on modules that are unrelated to specific registers and include lab results, Covid-19 investigations, and medications. 
 
In the third phase, Better created graphical diagrams of the patients’ clinical data for all 4 registers. 

Better's solution translates into the collection, management and use of data for two purposes: 

• To support active patient monitoring and disease management to improve children’s health and overall quality of life. 
• To become a research tool for daily clinical practice to used in conjunction with the clinical information system.

For more details.